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Patient Corner

Ethical, Legal and Social Implications (ELSI) Related to Biorepositories and Biospecimens

NCI has participated in, and supported, numerous meetings and workshops to address issues associated with collection of biospecimens from human subjects. Forums have included events convened by NCI, Food and Drug Administration (FDA), International Society for Biological and Environmental Repositories (ISBER), and Public Responsibility in Medicine and Research (PRIM&R). For information on ethical, legal, and policy challenges in biospecimen research please visit:

For ELSI, patient advocacy resources, multimedia, and more click here

patient results

Read our patient education booklet on providing tissue for research in clinical trials. To order copies of this brochure visit the NCI Publication Locator.

You can also view our video to hear from patients and researchers about the importance of your donated tissue.

Habla Español? Aprenda mas sobre el cancer y cómo contribuir a la investigación médica con su donación de sangre y otros tejidos aquí.

To find out more, visit our Frequently Asked Questions (FAQs)