Additional Links and Resources for Patients
Ethical, Legal, and Social Implications (ELSI) Resources Related to Biospecimens, Data collection and Sharing
- Privacy, Security, and Electronic Health Records
- Genomic Data Sharing (GDS) Policy
- Human Research Protections Program
- Summaries from BBRB-Sponsored Workshops
- History and Framework for Ethical Clinical Research
- NIH Department of Bioethics
- Office for Human Research Protections (OHRP)
NCI's ENRICH (Ethical and Regulatory Issues in Cancer Research) forum explores current ethical themes in cancer research. Visit their website for upcoming events