Additional Links and Resources for Patients

Patient Advocacy and Alliance

• NCI Cancer Information Service
• National Patient Advocate Foundation
• Health IT.gov: Store, share and analyze health information
• Sync for Science (S4S): Individual Health Data Access and Donation
• Cancer Common: not-for-profit network to help identify the best options for treating an individual's cancers
• National Organization for Rare Disorders (NORD)
• PCORNET: Patient-Powered Research Networks
• Genetic Alliance
• Center for Parent Information and Resources
• Genome Connect
• MyGene2
• DNAandU.org