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Last Updated: 09/01/17

Workshop on Release of Research Results to Participants in Biospecimen Studies

On July 8-9, 2010 the NCI BBRB held a workshop to provide recommendations concerning the conditions and processes for releasing research results to human research participants who contribute biospecimens. The workshop engaged participants with general and breakout discussions and generated recommendations in three key areas: (1) the appropriate handling of diagnostic discrepancies or incidental findings that are discovered during the pathology review of biospecimens; (2) the mechanisms by which individual or aggregate research results might be provided to participants in clinical studies; and (3) the conditions that warrant disclosure of aggregate research findings. The recommended guiding principles were used in the development of NCI Best Practices for the release of research results and policies for the cancer Human Biobank (caHUB).