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Last Updated: 07/28/14

Chicago Forum


Please click on the link below to download the forum agenda.

Chicago Forum Agenda
PDF Document: 41 KB

Forum Summary

Please click on the link below to download a summary of the forum proceedings.

Chicago Forum Summary
PDF Document: 70 KB


The Webcast of the December 3, 2007, NCI Biospecimen Best Practices Forum held in Chicago, Illinois, is accessible via the link below.

Chicago Forum Webcast


Time Session
9 a.m. - 9:15 a.m. Welcome and Opening Remarks
Steven T. Rosen, M.D.
Director, Robert H. Lurie Comprehensive Cancer Center
Part 1: Overview and Discussion ofNCI Best Practices for Biospecimen Resources
9:15 a.m. - 9:35 a.m. NCI Best Practices for Biospecimen Resources
PDF Document: 6.71 MB
Why Do We Need Biospecimen Best Practices?
Carolyn C. Compton, M.D., Ph.D.
Director, Office of Biorepositories and Biospecimen Research (OBBR), National Cancer Institute (NCI)
9:35 a.m. - 9:55 a.m. Overview of Technical and Operational Best Practices
PDF Document: 412 KB
State-of-the-Science Biospecimen Handling: Real-World Perspective
Elizabeth Hammond, M.D.
Professor of Pathology and Professor of Internal Medicine, University of Utah School of Medicine
Former Chairman, Department of Pathology, LDS Hospital and Urban Central Region, Intermountain Healthcare
9:55 a.m. - 10:10 a.m. Question-and-Answer Session
10:10 a.m. - 10:30 a.m. Overview of Ethical, Legal, and Policy Best Practices
PDF Document: 1.87 MB
Ethical, Legal, and Policy Implications of Using Human Biopecimens in Research: What You Need To Know
Lori Andrews, J.D.
Distinguished Professor of Law, Chicago-Kent College of Law
Director, Institute for Science, Law, and Technology Associate Vice President, Illinois Institute of Technology
10:30 a.m. - 10:50 a.m. The Importance of Best Practices to Patients, Survivors, Advocates, and the General Public
PDF Document: 1.81 MB
It’s All About the Patient: Putting Biospecimen Research in Perspective
Mary Lou Smith, J.D.
Cofounder, Research Advocacy Network
10:50 a.m. - 11:05 a.m. Question-and-Answer Session and Panel Discussion
11:05 a.m. - 11:25 a.m. Break
Part 2: Informatics Best Practices and Economic Issues for Biospecimen Resources
11:25 a.m. - 11:45 a.m. caBIG™, caTissue, and Achieving Silver-Level Compatibility
PDF Document: 635 KB
Informatics Solutions to Biospecimen Management: Finding the Right Tools
Warren Kibbe, Ph.D.
Associate Professor and Director of Bioinformatics,
Robert H. Lurie Comprehensive Cancer Center
Associate Director, Northwestern University Biomedical Informatics Center
11:45 a.m. - 12:05 p.m. Demonstration of caBIG™ Biospecimen Resource Management Tools
PDF Document: 3.30 MB
Warren Kibbe, Ph.D.
12:05 p.m. - 12:20 p.m. Question-and-Answer Session(open microphone)
12:20 p.m. - 12:50 p.m. Cost Recovery Models and Other Economic Issues Involved in the Implementation of theNCI Best Practices
PDF Document: 1.37 MB
Julie Schneider, D.Phil., Technology Program Manager, OBBR, NCI
Lisa Miranda, Technical Director, Tumor Tissue and Biospecimen Bank, University of Pennsylvania
12:50 p.m. - 1:05 p.m. Question-and-Answer Session (open microphone)
1:05 p.m. - 1:15 p.m. Break
Part 3: Next Steps and Closing Remarks
1:15 p.m. - 1:30 p.m. Assessing the Effects of Preanalytical Variables on Molecular Research: The Biospecimen Research Network
PDF Document: 2.14 MB
Helen Moore, Ph.D., Administrative Director, Biospecimen Research Network, OBBR, NCI
1:30 p.m. - 1:45 p.m. Biospecimen Research Database
PDF Document: 1.30 MB
Ian Fore, D.Phil.
Associate Director for Biorepository and Pathology Informatics,
NCI Center for Bioinformatics
1:45 p.m. - 1:55 p.m. Question-and-Answer Session
1:55 p.m. - 2 p.m. Closing Remarks
Carolyn C. Compton, M.D., Ph.D.
2 p.m. Adjournment

General Background Materials

NCI Best Practices for Biospecimen Resources

NCI Best Practices for Biospecimen Resources
PDF Document: 202 KB

The NCI Best Practices for Biospecimen Resources outlines the operational, technical, ethical, legal, and policy best practices for NCI-supported biospecimen resources.


Implementing the NCI Best Practices for Biospecimen Resources:
PDF Document: 35 KB

Bioinformatics and caBIG™-An Overview

Directed at scientists, consumer advocates, and biospecimen resource directors, this fact sheet prepared by the NCI Center for Biomedical Informatics and the NCI OBBR highlights the value and need for caBIG™ and is useful to stakeholder groups interested in data handling and sharing for biospecimen resources.

Implementing the NCI Best Practices for Biospecimen Resources:
PDF Document: 80 KB

Bioinformatics and caBIG™-Next Steps

This document is designed for biospecimen resource stakeholders who have been introduced to the caBIG™ initiative and are evaluating options and next steps for adopting caBIG™ or becoming caBIG™ compatible. It is a tool to help biospecimen resources make informed decisions about informatics options that would align them with the NCI Best Practices.

Materials for Advocates and the General Public

Biospecimen Basics
PDF Document: 149 KB

This informational publication issued by the NCI OBBR is designed to increase awareness and understanding among advocates and the interested public of the importance and role of biospecimens in cancer research. It outlines the need for and purpose of best practices for biospecimen resources.

Providing Your Tissue for Research: What You Need To Know
PDF Document: 220 KB

This NCI brochure will aid patients in making informed decisions about donating biospecimens for research.

Research Advocacy Network publications:

Coalition of National Cancer Cooperative Groups publication:

Personalized Health Care

Personalized Health Care: Opportunities, Pathways, Resources

Issued in September 2007, this is the first report by the U.S. Department of Health and Human Services on its Initiative on Personalized Health Care. This report delineates crucial areas of consensus upon which work must be focused to achieve personalized health care.