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Last Updated: 07/28/14

Boston Forum

Agenda

Please click on the link below to download the forum agenda.

Boston Forum Agenda
PDF Document: 40 KB

Forum Summary

Please click on the link below to download a summary of the forum proceedings.

Boston Forum Summary
PDF Document: 107 KB

Webcast

The Webcast of the November 5, 2007, NCI Biospecimen Best Practices Forum held in Boston, Massachusetts, is accessible via the link below. Note that breakout sessions were not recorded.

Boston Forum Webcast

Presentations

Time Session
9 a.m. - 9:05 a.m. Welcome and Opening Remarks
Carolyn C. Compton, M.D., Ph.D.
Director, Office of Biorepositories and Biospecimen Research (OBBR)
National Cancer Institute
Part 1: Overview and Discussion of NCI Best Practices
9:05 a.m. - 9:30 a.m. NCI Best Practices for Biospecimen Resources
Why Do We Need Biospecimen Best Practices?
PDF Document: 630 KB
Carolyn C. Compton, M.D., Ph.D.
9:30 a.m. - 9:55 a.m. Overview of Technical and Operational Best Practices
State-of-the-Science Biospecimen Handling: Real-World Perspective
PDF Document: 650 KB
Martin L. Ferguson, Ph.D.
Pharmaceutical and Life Sciences Consultant and Co-Founder of Ardais Corporation
9:55 a.m. - 10:20 a.m. Overview of Ethical and Policy Best Practices
Ethical and Policy Implications of Using Human Biopecimens in Research: What You Need To Know
PDF Document: 391 KB
P. Pearl O’Rourke, M.D.
Director, Human Research Affairs
Partners HealthCare System
10:20 a.m. - 10:45 a.m. Break
10:45 a.m. - 11:10 a.m. caBIG™, caTissue, and Achieving Silver-Level Compatibility
Informatics Solutions to Biospecimen Management: Finding the Right Tools for Your Resource
PDF Document: 1.31 MB
Ian Fore, D.Phil.
Associate Director for Biospecimen and Pathology Informatics
NCI Center for Bioinformatics
11:10 a.m. - 11:35 a.m. The Importance of Best Practices to Patients, Survivors, Advocates, and the General Public
It's All About the Patient: Putting Biospecimen Research in Perspective
PDF Document: 808 KB
Paula Kim
President and Chief Executive Officer
Translating Research Across Communities (TRAC)
11:35 a.m. - 12:15 p.m. Question-and-Answer Session (open microphone) and Panel Discussion
12:15 p.m. - 12:30 p.m. Charge for the Breakout Sessions
Carolyn C. Compton, M.D., Ph.D.
12:30 p.m. - 1:30 p.m. Lunch Break
Part 2: Concurrent Breakout Sessions
1:30 p.m. - 3 p.m. Concurrent Breakout Sessions
3 p.m. - 3:15 p.m. Break
Part 3: Closing and Adjournment
3:15 p.m. - 3:30 p.m. Reports From Breakout Sessions
3:30 p.m. - 3:45 p.m. The Biospecimen Research Database: Assessing the Effects of Preanalytical Variables on Molecular Research
PDF Document: 817 KB
Elisa Eiseman, Ph.D., Senior Scientist, RAND Corporation
3:45 p.m. - 4 p.m. Next Steps for Updating the NCI Best Practices and Closing Remarks
PDF Document: 630 KB
Carolyn C. Compton, M.D., Ph.D.
4 p.m. Adjournment

General Background Materials

NCI Best Practices for Biospecimen Resources

NCI Best Practices for Biospecimen Resources
PDF Document: 202 KB

The NCI Best Practices for Biospecimen Resources outlines the operational, technical, ethical, legal, and policy best practices for NCI-supported biospecimen resources.

Informatics

Implementing the NCI Best Practices for Biospecimen Resources:
PDF Document: 35 KB

Bioinformatics and caBIG™-An Overview

Directed at scientists, consumer advocates, and biospecimen resource directors, this fact sheet prepared by the NCI Center for Biomedical Informatics and the NCI OBBR highlights the value and need for caBIG™ and is useful to stakeholder groups interested in data handling and sharing for biospecimen resources.

Implementing the NCI Best Practices for Biospecimen Resources:
PDF Document: 80 KB

Bioinformatics and caBIG™-Next Steps

This document is designed for biospecimen resource stakeholders who have been introduced to the caBIG™ initiative and are evaluating options and next steps for adopting caBIG™ or becoming caBIG™ compatible. It is a tool to help biospecimen resources make informed decisions about informatics options that would align them with the NCI Best Practices.

Materials for Advocates and the General Public

Biospecimen Basics
PDF Document: 149 KB

This informational publication issued by the NCI OBBR is designed to increase awareness and understanding among advocates and the interested public of the importance and role of biospecimens in cancer research. It outlines the need for and purpose of best practices for biospecimen resources.

Providing Your Tissue for Research: What You Need To Know
PDF Document: 220 KB

This NCI brochure will aid patients in making informed decisions about donating biospecimens for research.

Research Advocacy Network publications:

Coalition of National Cancer Cooperative Groups publication:

Personalized Health Care

Personalized Health Care: Opportunities, Pathways, Resources

Issued in September 2007, this is the first report by the U.S. Department of Health and Human Services on its Initiative on Personalized Health Care. This report delineates crucial areas of consensus upon which work must be focused to achieve personalized health care.