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Last Updated: 07/28/14

Bethesda Forum

Agenda

Please click on the link below to download the forum agenda.

Bethesda Forum Agenda
PDF Document: 33 KB

Forum Summary

Please click on the link below to download a summary of the forum proceedings.

Bethesda Forum Summary
PDF Document: 55 KB

Webcast

The entire Bethesda Forum was recorded and can be viewed via the link below.

Bethesda Forum Webcast

Presentations

Time Session
8:30 a.m. - 8:45 a.m. Welcome and Opening Remarks
Carolyn C. Compton, M.D., Ph.D.
Director, Office of Biorepositories and Biospecimen Research (OBBR)
National Cancer Institute
Part 1: Overview and Discussion of NCI Best Practices
8:45 a.m. - 9:05 a.m. NCI Best Practices for Biospecimen Resources
PDF Document: 568 KB
Rationale and Development
Carolyn C. Compton, M.D., Ph.D.
9:05 a.m. - 9:25 a.m. Overview of Technical and Operational Best Practices
PDF Document: 52 KB
Mark Sobel, M.D., Ph.D.
Executive Officer
American Society for Investigative Pathology
9:25 a.m. - 9:35 a.m. Audience Questions and Comments
9:35 a.m. - 9:55 a.m. Overview of Ethical, Legal, and Policy Best Practices
PDF Document: 180 KB
Karen Thiel, Ph.D., J.D.
Associate
Patton Boggs, LLP
9:55 a.m. - 10:05 a.m. Audience Questions and Comments
10:05 a.m. - 10:25 a.m. The Importance of Best Practices to Patients and Advocates
PDF Document: 807 KB
Paula Kim
President and Chief Executive Officer
Translating Research Across Communities (TRAC)
10:25 a.m. - 10:35 a.m. Audience Questions and Comments
10:35 a.m. - 11 a.m. Break
Part 2: Bioinformatics and Evidence-Based Best Practices for Biospecimen Resources
11 a.m. - 11:20 a.m. Tools for Tracking and Accessing High-Quality Biospecimens
PDF Document: 1.48 MB
caBIG™, caTissue, and Achieving Silver-Level Compatibility
Kenneth H. Buetow, Ph.D.
Director
NCI Center for Bioinformatics
11:20 a.m. - 11:30 a.m. Audience Questions and Comments
11:30 a.m. - 11:40 a.m. Demonstration of caTissue
PDF Document: 2.84 MB
Ian Fore, D. Phil.
Associate Director for Biospecimen and Pathology Informatics
NCI Center for Bioinformatics
11:40 a.m. - 11:50 a.m. Audience Questions and Comments
11:50 a.m. - 12:10 p.m. Updating the NCI Best Practices for Biospecimen Resources: Toward Evidence-Based Best Practices
PDF Document: 689 KB
Importance of Stakeholder Participation in Updating the NCI Best Practices for Biospecimen Resources
Carolyn C. Compton, M.D., Ph.D.
12:10 p.m. - 12:20 p.m. Audience Questions and Comments
12:20 p.m. - 12:30 p.m. Closing Remarks
Carolyn C. Compton, M.D., Ph.D.
12:30 p.m. Adjournment

General Background Materials

NCI Best Practices for Biospecimen Resources

NCI Best Practices for Biospecimen Resources
PDF Document: 202 KB

The NCI Best Practices for Biospecimen Resources outlines the operational, technical, ethical, legal, and policy best practices for NCI-supported biospecimen resources.

Informatics

Implementing the NCI Best Practices for Biospecimen Resources :
PDF Document: 35 KB

Bioinformatics and caBIG™-An Overview

Directed at scientists, consumer advocates, and biospecimen resource directors, this fact sheet prepared by the NCI Center for Biomedical Informatics and the NCI OBBR highlights the value and need for caBIG™ and is useful to stakeholder groups interested in data handling and sharing for biospecimen resources.

Implementing the NCI Best Practices for Biospecimen Resources :
PDF Document: 80 KB

Bioinformatics and caBIG™-Next Steps

This document is designed for biospecimen resource stakeholders who have been introduced to the caBIG™ initiative and are evaluating options and next steps for adopting caBIG™ or becoming caBIG™ compatible. It is a tool to help biospecimen resources make informed decisions about informatics options that would align them with the NCI Best Practices.

Materials for Advocates and the General Public

Biospecimen Basics
PDF Document: 149 KB

This informational publication issued by the NCI OBBR is designed to increase awareness and understanding among advocates and the interested public of the importance and role of biospecimens in cancer research. It outlines the need for and purpose of best practices for biospecimen resources.

Providing Your Tissue for Research: What You Need to Know
PDF Document: 220 KB

This National Cancer Institute brochure will aid patients in making informed decisions about donating biospecimens for research.

Research Advocacy Network publications:

Coalition of National Cancer Cooperative Groups publication:

Personalized Health Care

Personalized Health Care: Opportunities, Pathways, Resources

Issued in September 2007, this is the first report by the U.S. Department of Health and Human Services on its Initiative on Personalized Health Care. This report delineates crucial areas of consensus upon which work must be focused to achieve personalized health care.