NCI Biospecimen Best Practices Forum - Chicago
Northwestern Memorial Hospital Conference CenterChicago, Illinois
December 3, 2007
Agenda
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Chicago Forum Agenda  PDF Document: 41 KB |
Forum Summary
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| Please click on the link below to download a summary of the forum proceedings. PDF Document: 70 KB |
Webcast
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The Webcast of the December 3, 2007, NCI Biospecimen Best Practices Forum held in Chicago, Illinois, is accessible via the link below. |
Presentations
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| 9 a.m. – 9:15 a.m. | Welcome and Opening Remarks Steven T. Rosen, M.D. Director, Robert H. Lurie Comprehensive Cancer Center |
| Part 1: Overview and Discussion of NCI Best Practices for Biospecimen Resources | |
| 9:15 a.m. – 9:35 a.m. | NCI Best Practices for Biospecimen Resources PDF Document: 6.71 MB Why Do We Need Biospecimen Best Practices? Carolyn C. Compton, M.D., Ph.D. Director, Office of Biorepositories and Biospecimen Research (OBBR), National Cancer Institute (NCI) |
| 9:35 a.m. – 9:55 a.m. | Overview of Technical and Operational Best Practices PDF Document: 412 KB State-of-the-Science Biospecimen Handling: Real-World Perspective Elizabeth Hammond, M.D. Professor of Pathology and Professor of Internal Medicine, University of Utah School of Medicine Former Chairman, Department of Pathology, LDS Hospital and Urban Central Region, Intermountain Healthcare |
| 9:55 a.m. – 10:10 a.m. | Question-and-Answer Session |
| 10:10 a.m. – 10:30 a.m. | Overview of Ethical, Legal, and Policy Best Practices PDF Document: 1.87 MB Ethical, Legal, and Policy Implications of Using Human Biopecimens in Research: What You Need To Know Lori Andrews, J.D. Distinguished Professor of Law, Chicago-Kent College of Law Director, Institute for Science, Law, and Technology Associate Vice President, Illinois Institute of Technology |
| 10:30 a.m. – 10:50 a.m. | The Importance of Best Practices to Patients, Survivors, Advocates, and the General Public PDF Document: 1.81 MB It’s All About the Patient: Putting Biospecimen Research in Perspective Mary Lou Smith, J.D. Cofounder, Research Advocacy Network |
| 10:50 a.m. – 11:05 a.m. | Question-and-Answer Session and Panel Discussion |
| 11:05 a.m. – 11:25 a.m. | Break |
| Part 2: Informatics Best Practices and Economic Issues for Biospecimen Resources | |
| 11:25 a.m. – 11:45 a.m. | caBIG™, caTissue, and Achieving Silver-Level Compatibility PDF Document: 635 KB Informatics Solutions to Biospecimen Management: Finding the Right Tools Warren Kibbe, Ph.D. Associate Professor and Director of Bioinformatics, Robert H. Lurie Comprehensive Cancer Center Associate Director, Northwestern University Biomedical Informatics Center |
| 11:45 a.m. – 12:05 p.m. | Demonstration of caBIG™ Biospecimen Resource Management Tools PDF Document: 3.30 MB Warren Kibbe, Ph.D. |
| 12:05 p.m. - 12:20 p.m. | Question-and-Answer Session (open microphone) |
| 12:20 p.m. - 12:50 p.m. | Cost Recovery Models and Other Economic Issues Involved in the Implementation of the NCI Best Practices PDF Document: 1.37 MB Julie Schneider, D.Phil., Technology Program Manager, OBBR, NCI Lisa Miranda, Technical Director, Tumor Tissue and Biospecimen Bank, University of Pennsylvania |
| 12:50 p.m. - 1:05 p.m. | Question-and-Answer Session (open microphone) |
| 1:05 p.m. - 1:15 p.m. | Break |
| Part 3: Next Steps and Closing Remarks | |
| 1:15 p.m. - 1:30 p.m. | Assessing the Effects of Preanalytical Variables on Molecular Research: The Biospecimen Research Network PDF Document: 2.14 MB Helen Moore, Ph.D., Administrative Director, Biospecimen Research Network, OBBR, NCI |
| 1:30 p.m. - 1:45 p.m. | Biospecimen Research Database PDF Document: 1.30 MB Ian Fore, D.Phil. Associate Director for Biorepository and Pathology Informatics, NCI Center for Bioinformatics |
| 1:45 p.m. - 1:55 p.m. | Question-and-Answer Session |
| 1:55 p.m. - 2 p.m. | Closing Remarks Carolyn C. Compton, M.D., Ph.D. |
| 2 p.m. | Adjournment |
General Background Materials
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| NCI Best Practices for Biospecimen Resources |
| NCI Best Practices for Biospecimen Resources PDF Document: 202 KB The NCI Best Practices for Biospecimen Resources outlines the operational, technical, ethical, legal, and policy best practices for NCI-supported biospecimen resources. |
| Informatics |
| Implementing the NCI Best Practices for Biospecimen Resources: PDF Document: 35 KB Bioinformatics and caBIG™-An Overview Directed at scientists, consumer advocates, and biospecimen resource directors, this fact sheet prepared by the NCI Center for Biomedical Informatics and the NCI OBBR highlights the value and need for caBIG™ and is useful to stakeholder groups interested in data handling and sharing for biospecimen resources. |
| Implementing the NCI Best Practices for Biospecimen Resources: PDF Document: 80 KB Bioinformatics and caBIG™-Next Steps This document is designed for biospecimen resource stakeholders who have been introduced to the caBIG™ initiative and are evaluating options and next steps for adopting caBIG™ or becoming caBIG™ compatible. It is a tool to help biospecimen resources make informed decisions about informatics options that would align them with the NCI Best Practices. |
| Materials for Advocates and the General Public |
| Biospecimen Basics PDF Document: 149 KB This informational publication issued by the NCI OBBR is designed to increase awareness and understanding among advocates and the interested public of the importance and role of biospecimens in cancer research. It outlines the need for and purpose of best practices for biospecimen resources. Providing Your Tissue for Research: What You Need To Know PDF Document: 220 KBThis NCI brochure will aid patients in making informed decisions about donating biospecimens for research. Research Advocacy Network publications:
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| Personalized Health Care |
| Personalized Health Care: Opportunities, Pathways, Resources Issued in September 2007, this is the first report by the U.S. Department of Health and Human Services on its Initiative on Personalized Health Care. This report delineates crucial areas of consensus upon which work must be focused to achieve personalized health care. |
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